Whether you’re already managing your sickle cell or making the transition to adult care, make sure you find a hematologist you feel comfortable with. You should feel supported by your doctor. You want someone with whom you can share all your symptoms and concerns. If you don’t feel this way, it’s okay to switch doctors. The most important thing is that you keep up your medical care.
Your primary care doctor and hematologist should understand sickle cell and your unique needs. Other doctors, such as those in the emergency room, may not always understand sickle cell as well since they don’t treat it regularly.
There are two stigmas or misconceptions you may be likely to face in the emergency room:
There are several things you can do to advocate for your care if you are faced with misconceptions and stigmas. Here are some tips:
Virtual healthcare visits and telemedicine have become more and more common in modern day. Utilizing telemedicine in combination with in-person doctor’s visits has become a convenient and efficient way to stay on top of your sickle cell care.
To best prepare for virtual visits with your doctor, you should try to:
Doctors are finding useful ways to leverage telemedicine for the check-ups in between taking labs or for visits in which they don’t need to see their patients in person. Virtual visits can be an extremely important tool to help keep you feeling your best.
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The information provided is for educational purposes only and is not intended to replace discussions with a healthcare provider.