The Value of Sickle Cell Community - At a young age, Tristan learned the importance of building a sickle cell network including family, healthcare providers, advocacy organizations and others to support him on his journey.
Supporting Her Daughter's Sickle Cell Journey - As a sickle cell caregiver, Elle became an advocate by doing research, getting to know her daughter's healthcare team and learning to be proactive.
There are many misconceptions about sickle cell. Like it’s contagious. Like people with sickle cell are drug seekers. Like the only effect is pain. Because of these widespread beliefs, people with this genetic blood disorder may feel misunderstood, even isolated. Eliminating the stigmas surrounding sickle cell begins when we listen, learn, and share.
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Sickle cell is an inherited condition where healthy,
round red blood cells become sickled, or banana-
shaped. These rigid crescents are not able to get
through small blood vessels and break down easily. Red blood cells are responsible for carrying oxygen throughout the body. The sickling process begins with hemoglobin, the part of the red blood cell that carries oxygen. When cell sickle, they can break down and there are fewer red blood cells to carry oxygen to all parts of the body. This can have a serious, lifelong impact on your tissues, organs and bones.
Having sickle cell means living with it every moment of every day. It’s managing symptoms and chronic pain. It’s dealing with hurtful stereotypes. And then, it’s reaching your goals anyway.
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The information provided is for educational purposes only and is not intended to replace discussions with a healthcare provider.